An Informative Infographic c/o St. Baldrick’s

Robot Boy & The Intrusive Interloper

September is the month designated for Childhood Cancer Awareness, but for the patients and their parents, it isn’t confined to a month. It is a lifetime.

This is a very informative infographic from St. Baldrick’s Foundation concerning childhood cancer stats, money allocated by the government (very little) to the cause, and where your donations may go when you donate to a cancer foundation.

I also urge you to click the graphic to visit St. Baldrick’s website. Thank you.

St. Baldrick's Foundation – About Childhood Cancer

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Limited Freedom

Robot Boy & The Intrusive Interloper

fountain

RB had a fever yesterday and we had to return to the ER at CHNOLA. Everything seems fine, but he’s being treated with antibiotics for safety reasons since some bacteria came back in his tracheostomy. It’s a bacteria he’s been colonized with and will always be there. His oncology team advised us that next time he has a fever, we won’t have to come to the ER. He can be treated for an illness by his regular pediatrician as he is no longer a cancer patient. After his next scan (which is this month) they are going to schedule a surgery to remove his port. All of his counts are normal and he is completely recovered from the chemo and radiation.

Although he has a lot of physical disabilities still (many of which he is overcoming slowly, and with therapy;some from which he will never recover). Things are by no…

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Hairless and Hopeful

Presently on the way to have my head shaved. Why would I do this? Well, I’ll explain in case you’re just tuning in.

See, there’s a foundation called St. Baldrick’s Foundation. They collect funds toward pediatric cancer research. They are the only nonprofit that dedicates all funds to ped cancer research, and they are only second to the federal government in funding pediatric cancer.

Why go bald? I’m doing it to raise donations and awareness. But also in solidarity with kids with cancer who lose their hair to chemo and radiation. One of those kids is my own son Robot Boy.

He’s currently-by definiton-in remission. The mass entombed within his brain stem and spinal cord hasn’t changed in five months, and so we are assuming and hoping that what remains is only scar tissue. There is no way to know. All we can do is monitor him, and wait.

Why should you help this cause? Well, if the fact that it helps fund life saving research that can save kids’ lives and hopefully conquer kids’ cancer isn’t enough, then I don’t know what to tell you. But I can tell you that kids’ cancer is the least funded of all cancers, and funds for research are desperately needed.

I can only ask that you consider helping our cause, and please visit our team’s link. You don’t have to shave to help a kid with cancer. You don’t have to donate a lot. Dollars add to more dollars.

Team Robot For St. Baldrick’s Foundation

Point. Click. Donate.

White House Petition

White House Petition

Hello dear readers,

As you may have noticed, I don’t get political here at A Wordsmith’s Brainworks. I like to keep things light and mostly related to my life, my writing, and reading. But occasionally, I get froggy. And I’ve never been froggy and not l leapt. It’s not in my nature. Sometimes I leap right into the mouth of a predator, but I always manage to escape relatively unharmed.

Anyway, I think we as a nation need to be more amalgamated. Are we not all Americans? Regardless if by birth or by immigrating, are we not all effected by our leaders’ choices? Do we not choose to pay their salaries, and expense accounts to boot?

Our nation is in a financial crisis, and as usual, the things being cut are essential services, social services, homeland security services (which includes disaster preparedness), social security, medicaid, and early learning programs; the list goes on. But why then are we – we the tax payers of the United States – being given the short end of the proverbial stick when our leaders are living high on the hog, on our dollars? Shouldn’t the fiscal cuts start from the top? Should the congress and senate be allowed to vote themselves a raise without our say so? We pay them. We work hard to keep this nation running-regardless of party affiliation. 

I feel that we must stand united, people. Our government wants to distract us with inane issues while they rob us and take away essential services. We shouldn’t allow it. They are employed by us, the people. 

I am asking all of you, as Americans, to sign my petition to reduce the pay of senators, congressmen, and the president, and to also eliminate their expense accounts. I can’t pretend to know how much money will be saved this way, but I’m sure it will make a large impact on our nation’s debt.

I worked as a public servant for many years, and the people had to vote on whether or not their taxes increased for our pay, however we don’t even vote on the raises congress and senate gives to themselves. Why is that?

Please sign the petition. We are a nation divided, and we will fall, if we do not stand united.

Thank you for hearing me out. Please sign. We need 100,000 signatures.