An Informative Infographic c/o St. Baldrick’s

Robot Boy & The Intrusive Interloper

September is the month designated for Childhood Cancer Awareness, but for the patients and their parents, it isn’t confined to a month. It is a lifetime.

This is a very informative infographic from St. Baldrick’s Foundation concerning childhood cancer stats, money allocated by the government (very little) to the cause, and where your donations may go when you donate to a cancer foundation.

I also urge you to click the graphic to visit St. Baldrick’s website. Thank you.

St. Baldrick's Foundation – About Childhood Cancer

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Limited Freedom

Robot Boy & The Intrusive Interloper

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RB had a fever yesterday and we had to return to the ER at CHNOLA. Everything seems fine, but he’s being treated with antibiotics for safety reasons since some bacteria came back in his tracheostomy. It’s a bacteria he’s been colonized with and will always be there. His oncology team advised us that next time he has a fever, we won’t have to come to the ER. He can be treated for an illness by his regular pediatrician as he is no longer a cancer patient. After his next scan (which is this month) they are going to schedule a surgery to remove his port. All of his counts are normal and he is completely recovered from the chemo and radiation.

Although he has a lot of physical disabilities still (many of which he is overcoming slowly, and with therapy;some from which he will never recover). Things are by no…

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Hairless and Hopeful

Presently on the way to have my head shaved. Why would I do this? Well, I’ll explain in case you’re just tuning in.

See, there’s a foundation called St. Baldrick’s Foundation. They collect funds toward pediatric cancer research. They are the only nonprofit that dedicates all funds to ped cancer research, and they are only second to the federal government in funding pediatric cancer.

Why go bald? I’m doing it to raise donations and awareness. But also in solidarity with kids with cancer who lose their hair to chemo and radiation. One of those kids is my own son Robot Boy.

He’s currently-by definiton-in remission. The mass entombed within his brain stem and spinal cord hasn’t changed in five months, and so we are assuming and hoping that what remains is only scar tissue. There is no way to know. All we can do is monitor him, and wait.

Why should you help this cause? Well, if the fact that it helps fund life saving research that can save kids’ lives and hopefully conquer kids’ cancer isn’t enough, then I don’t know what to tell you. But I can tell you that kids’ cancer is the least funded of all cancers, and funds for research are desperately needed.

I can only ask that you consider helping our cause, and please visit our team’s link. You don’t have to shave to help a kid with cancer. You don’t have to donate a lot. Dollars add to more dollars.

Team Robot For St. Baldrick’s Foundation

Point. Click. Donate.

Gratitude

– noun
1. the quality or feeling of being grateful or thankful

I wrote recently about my son, whom I regularly refer to as Scoots or Doodles, having been diagnosed with a malignant brain tumor. When we first shared this information with family and friends, right away everyone wanted to know how to help and many of our friends and relatives have been going out of their way to do everything they possibly can-including finding ways to raise money to help our family with various costs (which will be exorbitant) related to my son’s illness.

To say I am overwhelmed by their generosity would be an understatement. I can not express my gratitude and appreciation to them, and others, who are helping us by donating money, coordinating events, hanging flyers, putting out donation jars, and spreading the word about our family’s situation. I never expected such generosity, and I am simply overcome with emotion by it.

Some of my very close friends have set-up a donation page at GiveForward.com for my son under the name Team A.J. Already we’ve received generous donations from not only friends, family, co-workers, former co-workers, etc but also from strangers. We are so thankful to them all. There aren’t words to express it. I can’t say thank you enough times, but I will say it now-Thank You.

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