Summerland. Are You There?

20140812-183244.jpg
Image courtesy of sattva/ FreeDigitalPhotos.net

Godspeed on your trek
across the boggy quagmire.
May the weight of your mortal coil
release you.
You’ve been emancipated.
Exit the lightlessness.
Match your tormentors.
No longer be a victim to anguish.
Clutch the dim radiance
filtering through the fog.
Struggle toward its source.
Pass the souls that are adrift
and that do not know they are irrecoverable.
Ignore the tortured souls’ calls.
You are not one of them.
May warmth surround you.
Do not concede to the cold.
Witness kaleidoscopic ambience.
Summerland.
Are you there?

In 1998, Robin Williams was in the film What Dreams May Come based on Richard Matheson’s novel of the same name (released in 1978). Coincidentally, the novel is about a man who goes on a quest after his death to rescue his wife from eternal torment following her suicide. As most everyone is aware, Robin Williams was found dead August 11, 2014 of apparent suicide. He battled addiction and depression. Richard Matheson died June 23, 2013 of natural causes. Maybe they will meet in Summerland.

Learn more about suicide prevention, warning signs, how to get help for yourself or someone you know: http://www.suicidepreventionlifeline.org

Learn more about What Dreams May Come, Richard Matheson, and the origins of Summerland: Goodreads.

Mega Crush

Peter Parker’s been deceased for a year. A year. Sigh. I suppose it’s time to move on. I simply cannot love Otto Octavius, even if he is in P.P.’s body (ASM #700 in case you were doing anything other than pining for an expired comic book super-hero last September). I thought I might have been falling for Tony Stark briefly, but it was a passing infatuation. However, I’ve recently become intrigued by a new fictional cartoon boy.

screen2do
“Ollo.”

We recently purchased Megamind for the boy, at my urging. (He really wanted it. Really.) I’d seen the movie already and, like many of Dreamwork’s cartoon movies, it caused me to laugh my ass off.  Even still, it wasn’t until watching the movie a few times that I developed my new admiration for the bad to good super-genius with the complexion “of a popular primary color.” Firstly, he has some similarities to P.P., well only one, his scientific genius. That’s really all the two have in common. BUT, I realized there was much Megamind and I have in common. For example, we have the same taste in music. His wardrobe is quite impressive, except he’d might have to give up those baby seal skin leather boots. I can’t deny they look cool, though. And, in some ways that are similar but different, we both decided to change our lives toward the positive. Also, we’re both short.

The only video I could find that I wanted to use here has Asian subtitles, so, if you can read them, COOL! If not just ignore them and watch the video. K thanks.

Beside what we have in common, he makes me laugh. That always really wins me over. I’m really into blue, too. A lot. It was one thing I loved about P.P., his red and blue suit. And while Megamind: Defender of Metrocity might not look as steaming hot in the Black Mamba as P.P. looked in his tights, he has kind of a cute tush. I also enjoy his languid movements, and evil laugh. Oh, just everything.

megamind_evil_overlord_by_zeroxkinz-d473br9
Minion’s pretty cute, too.

But alas, there is Roxanne Ritchie, whom Megamind deserves. Because they’re both fictional cartoon people, and I’m just a fan-girl with unrequited, and possibly psychosis linked, love interests.

 

(Disclaimer: Megamind and everything with his likeness on it is the property of Dreamworks Animation and Paramount Studios. Peter Parker, Spider-Man, and any likenesses thereof are the properties of Stan the Man Lee and Marvel Comics [and now The Walt Disney Company].)

(Disclaimer Disclaimer: While I am a fan of Will Ferrell, please don’t analyze my Megamind crush as some Freudian, unconscious desire for his body. Thank You.)

 

Limited Freedom

Robot Boy & The Intrusive Interloper

fountain

RB had a fever yesterday and we had to return to the ER at CHNOLA. Everything seems fine, but he’s being treated with antibiotics for safety reasons since some bacteria came back in his tracheostomy. It’s a bacteria he’s been colonized with and will always be there. His oncology team advised us that next time he has a fever, we won’t have to come to the ER. He can be treated for an illness by his regular pediatrician as he is no longer a cancer patient. After his next scan (which is this month) they are going to schedule a surgery to remove his port. All of his counts are normal and he is completely recovered from the chemo and radiation.

Although he has a lot of physical disabilities still (many of which he is overcoming slowly, and with therapy;some from which he will never recover). Things are by no…

View original post 318 more words

Shaving & Sharing

I wanted to make my first ever vlog, however, I couldn’t get my video to upload to YouTube or Dropbox-or anyplace! Soooo…. I went with Plan B, take still shots of the video and create a photo blog!

Last week, I was contacted by an acquaintance who was interested in shaving his head for September to raise awareness for Pediatric Cancer, and he wanted RB and me to be involved. We decided I’d do his shave (I’m not shaving my own head again until the next St. Baldrick’s Event, so I’m letting my hair grow back right now), and he chose Sunday September 1st, since it was the first day of Childhood Cancer Awareness month.

photo 1
The back window of Travis’s pickup.

Our friend, Travis, was the shavee. Travis is a firefighter who decided to help raise awareness for childhood cancer. He’s also a graduate student at Nicholl’s State University studying marine and environmental biology. All of his research is in microbiology, and he hopes to get onto a pediatric oncology research team after graduation.

Pre-shave photo with me, RB, and Travis. RB isn't very pleased with his new glasses. But I think they're cute as can be!
Pre-shave photo with me, RB, and Travis.

On Sunday, Travis came to our home so that I could video the shave so that we could share it. Unfortunately, like I’ve already written, the tech gods were not smiling down on me. Instead of being able to share the video, I can still share still shots of the video, though!

2013-09-02 11.42.272013-09-02 11.44.362013-09-02 11.44.11

2013-09-02 11.45.59
2013-09-02 11.47.032013-09-02 11.47.12

photo 3

I’m an expert shaver, by the way. I’ve been shaving Robot Dad’s head for about 13 years now. And I shaved my own a few times after I initially shaved it last March, too.

Travis decided to go all the way, with a razor.
Travis decided to go all the way, with a razor.
Post shave photo with RB
Post shave photo with RB

Not only did Travis decide to shave his head for Childhood Cancer Awareness, he also spent Sunday chalking the back windshields of cars with messages to help spread the word about pediatric cancer.

photo 2

photo 1

 

He even did Robot Boy’s van before he left so that we can spread the message whenever we’re on the road, too.

photo

 

In my video, I thanked Travis and everyone who goes out of their way to spread awareness for pediatric cancer. Those of us in the pediatric cancer community try to make childhood cancer known to more people throughout the year, but especially during September because it is Childhood Cancer Awareness Month. We are thankful to everyone who shares the message, as well.

photo 2

September is Gold

SeptGoldPic

September is Childhood Cancer Awareness Month, and the color is gold. Pediatric cancer is not a popular subject. It isn’t something we like to discuss or think about. What parents want to imagine their child with cancer? We didn’t want to. Unfortunately, avoiding the thought of it didn’t prevent Robot Boy from developing brain cancer. A PNET-primitive neuroectodermal tumor-to be exact. It’s a long word, but it’s one this mother won’t forget. A PNET is a rare type of brain tumor that carries with it a survival rate of approximately fifty-three percent. My son, RB, was given a forty percent chance of survival.

Brain cancers aren’t the only types of cancer that afflict our youth. According to the National Cancer Institute: “Among the 12 major types of childhood cancers, leukemias (blood cell cancers) and cancers of the brain and central nervous system account for more than half of the new cases.” (http://www.cancer.gov/cancertopics/factsheet/Sites-Types/childhood) Cancer is the leading cause of death by disease for those under the age of nineteen. Even though, pediatric cancer is the least funded and least acknowledged of all cancers. Maybe this is because we don’t want to talk about it. But we aren’t doing the children any favors by avoiding the issue.

Brain tumors are the most common form of solid tumors in children.
Brain tumors are the most common form of solid tumors in children.

Childhood Cancer Awareness is important because pediatric cancer isn’t as widely publicized as other cancers. For this reason, it isn’t funded as much as other cancers, too. It is rare, compared to other types of cancer, but it is just as important. On Sunday September 1, I’m shaving again for Childhood Cancer Awareness. Not my own head this time, but someone else’s. Someone else who is interested in helping to bring recognition to this deadly disease. He asked specifically that RB and I be involved with his selfless act to help bring attention to pediatric cancer. We are more than happy to oblige.

I went bald by choice. Unfortunately, due to harsh, poisonous medications, children with cancer don't have the choice.
I went bald by choice. Unfortunately, due to harsh, poisonous medications, children with cancer don’t have the choice.

The last time I shaved my head was for a St. Baldrick’s Foundation Event, and though this shave isn’t for any event, you can still visit RB’s St. Baldrick’s Foundation home page (http://stbaldricks.org/teams/robotboy) and make a donation. If you’re wondering why you should donate to St. Baldrick’s Foundation, I’ll let you know that they are the second largest entity that dedicates funds to pediatric cancer research (the U.S. Government is the first). I’ll also explain that they dedicate more funds to research than any other cancer foundation-over eighty percent of each dollar donated. They’re funding research in many areas, including those for cancer treatments that are less harmful than current treatments-those that can leave patients with a variety of disabilities.

Robot Boy before we learned he had cancer, before the surgery and treatments that later disabled him, most likely for life.
Robot Boy before we learned he had cancer, before the surgery and treatments that later disabled him-most likely for life.

According to St. Baldrick’s website, 175,000 kids are diagnosed with cancer each year. A child is diagnosed every three minutes. There isn’t much hope for a cure for some children, but because of improved research and treatments, kids’ overall survival rate has dramatically increased over the last sixty years. (http://www.stbaldricks.org/about-childhood-cancer)

Please share. Please donate if you’re able. Any amount is helpful (and much appreciated!). Childhood Cancer is a vicious, insidious killer. Sadly, it’s one that little is known about.